#dachshund #lily #sausagedog #sunday
New vs Old
If you are squeamish look away! This was a couple of days ago but its healing very well and can’t wait for these IVs to finish! #cysticfibrosis #cf #diabetes #portacath #port #chronicillness #chronic #chronicpain
Hi everyone! I have been trying to write a blog post for the last week but its been so hard as I have been mostly sleeping or in pain! Well most of you know I had a new Port fitted on the 26th last month. It went well but as I chose to have a general anaesthetic, My chest and body payed for that afterwards. I was under for 3 hours as my body didn’t want to wake up as the anaesthetic wore off! I have also been in hospital since and hopefully will be coming out this Friday (fingers crossed!) My infection levels were higher so they decided to keep me in longer and to put me on 3 IV antibiotics also. I don’t feel 100% yet, but hopefully soon as I miss being with my doggies! I would of like to of picked up quicker but at least I have a pretty cool scar on my left arm now! Whilst being in here I have tried to get my sugars as normal as possible also, which whoever knows me, knows they are far from the normal range. Its so difficult with getting your sugars normal as one minute you think there fine, the next your grumpy and the glucose meter is reading in the 20s! I also had a severe hypo last week, luckily I was in here as they dropped to 1.5. I was so out of it I fell asleep afterwards for 4 hours straight, it knocks the complete life out of you. Hopefully when I start getting back to normal and at home, I can try to get them back down or at least a little lower. High blood sugars affect everything from being moody to having serious problems with your physical health. Having Cystic Fibrosis and having high blood sugars is very serious as it causes more harm to your lungs which means more scarring and infection, no matter how much exercise or physio you do, if you have high sugars you are going to keep having chest infections. On a happier note, I now have a fully functioning port that I don’t have to worry about (hopefully) L x
Update on the new port!
So i have more news on when I will be getting my new shiny port! It will be the… *drum roll* FRIDAY The 26th! Im glad its sooner than later because I need IVs still! Im a little more nervous this time as I have to have the old one out and the new one in. I will be staying in for a few nights depending on the pain and discomfort. Also due to my chest now also its not the best, so extra physio! I will be posting once or twice more before my operation, and lots in hospital! Hopefully everything goes to plan and it works normal! L x
Goodbye port, hello new port….
Today was supposed to be a normal day. I was meant to go to St James to start my 2 week course of IV antibiotics, sadly that didn’t happen! As they put the needle in the port, it wouldn’t flush, it just wouldn’t do anything at all. I just thought it might be the needle itself, but as they tried a new needle, sadly that one didn’t work either. As they tried to flush the line with Heparin, it just started to balloon at the end of my line up on my neck, gross I know. I felt an intense pain in my neck and was beginning to worry! The swelling went down finally and I had the needle taken out. I was worried it might be a blood clot or it had a breakage in the line itself! I honestly felt very scared and frightened it might have come loose in my neck. I had an ultrasound and X-ray and they showed up normal, which was a massive relief! The problem was at the end of the line, it had moved over time and became stuck in a weird position. It was such a relief but still scary as to why it ballooned up! I will be getting a call tomorrow from the hospital to see when I can come in and have my new port fitted, and start IVs straight away. It was a weird day thinking I would be home before 6 with my normal port, but it didn’t work that way today! At least I get to have my brand new shiny port soon! L x
Merry Christmas Everyone!
Disney World 2017!
Its been a while since i last posted! Everything has just gone so quickly and my physio and treatment take up so much time of my days. I haven’t had a hospital visit since August, which i am very proud of myself for, plus i haven’t had IV antibiotics since early November, which is also a massive thing for me! Winter is normally the worse time of year for me as there is flu and colds around, which is why i have my vaccination every year for flu. It makes me feel rubbish for a couple of days though! I am so excited to be going to Florida on boxing day! The walking helps so much for my chest, plus its also fun to think that I’m not doing exercise. Im hoping this New year that my hospital admissions will be far less than this year, and hopefully not a lot of IVS either. Im going to try and do more exercise this year also, which is so hard for me considering i have arthritis in my knees! I will be posting more on my holiday and hopefully before Christmas! I hope you all have a wonderful Christmas and a lovely happy new year! L x
Its been a while..
So for the past few months i haven’t been able to write a post. In August i was in hospital for 15 days, and it was so frustrating for me as i wasn’t feeling any better.Finally i got back on my feet, but only with my physical health, not mentally. Whilst i was in hospital i had my happy pills (antidepressant pills) dosage upped, and i am still on a high dosage. I call them happy pills as its more depressing calling them antidepressants! I got home and i didn’t have the energy to do anything at all, all i wanted to do was sleep or sit on the sofa. I tried so hard to do anything but nothing seemed to help, i didn’t want my mental affecting my physical health more than it has, so i tried and tried. I finally started going on a walk everyday, which made a difference day by day! I enjoyed seeing the dogs playing and also not thinking any worries. So here i am now, October and i haven’t had IVs since early September! That is a big achievement for me as it was every 2/3 weeks. October is actually one of my favorite months as i am in love with Halloween, like i am obsessed! I will be blogging a lot more now and hopefully IVs wont be happening anytime soon! L x
#cysticfibrosis #chronicillness #CF #diabetes #65roses #cysticfibrosissucks #chronic #blogger